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High risk surgery. Is it worth it?

Neuroendocrine Tumors (NETs) | Last Active: Mar 29 11:38pm | Replies (40)

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@gig666

I have had nodules in has of lu mgs 6+ years, scanned for 4 years, then said no need for more, nodules were stable. Through abdominal CAT scan, they noticed one in each lung grew, not alot! But l was suffering from NETS for 10 months before, worse being my gout, large colon major diverticulitis, 10 polpys. Flushing is worse, breathing l gasp for air. Excruciating colon rectal pain, which my G.I. I contacted 21 days ago, everyone is waiting l guess for this Pet scan. Which got cancelled Friday, rescheduled for Monday.
Help, head me in right direction, My oncologist watching my BED numbers creep up! Last August l had 4 iron count, had 8 infusions and my RBC. numbers started climbing, my iron is steady.

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Replies to "I have had nodules in has of lu mgs 6+ years, scanned for 4 years, then..."

Wow everyone is on such a different journey.
I also have chronic diverticulitis in my descending bowel. Assuming it was diverticulitis flaring up led me to find my net.
I’m now intermittent fasting each day, which is helping with the diarrhoea and feeling generally much better.
Waiting for doctors and appointments has disrupted my life. We are constantly rearranging our schedule, cancelling plans, making more medical appointments.
Waiting for the next results or the doctors to arrange referrals etc.
We try not to be constantly discussing treatments and avoid focusing on my health issues.
one side effect of the pet scans is the other unrelated findings in the reports. Surgeons only focus on the part of the report related to their area and completely ignore other findings
You need to become a researcher into medical terms as even GPs struggle with them
I now have appointments with Urologists, endocrinologists, dieticians as a result of the scans. Potentially more operations
I had hoped that this year I would stay away from Doctors but it’s becoming worse than last year.
I want it to stop but maybe next year.
Good luck with your tests and thanks for contributions.