Hello @731 and welcome to the Head and Neck group. ACC discussions appear to be rare however you could simply enter "Adenoid Cystic Carcinoma" in the search bar at the top which will take you to a discussion going on back in 2018 and a few others.
As with most of these facial and neck cancers, the treatment damage can at times seem worse than the cancer itself although it will eventually resolve. Many of us here have had surgery and radiation to our "noggin" so in that respect there are many here who can help with coping with the results of that battle.
But let's hold out hope that there is someone currently active and/or you could simply respond to anyone from your search feeds of ACC and perhaps they will alert to the notifications they might receive. Just respond directly to the actual post or response comment block and that person then can be alerted, or send them a private message. It sometimes takes a few days for responses to fire up. Be patient-patient. Hard to do when you are frightened by a diagnosis as I know full well.
Recent diagnosis? What say your physicians about path and prognosis?