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Recently diagnosed with MAC and nervous about meds
MAC & Bronchiectasis | Last Active: Mar 18 9:27am | Replies (23)Comment receiving replies
Thank you so much for your input. I’m just getting started with the nebulizer. Hoping that will help with the cough. I notice some people recommending exercise. I get winded very quickly. If I try to continue, I get lightheaded. I use my Albuterol inhaler before I try to exercise but it doesn’t seem to help much anymore. I’m also on symbicort. My pulse ox is usually around 93 and Doc says I should get on oxygen if it gets below 90. Do you have any thoughts on that? I’m afraid of becoming dependent on it so early after my diagnosis. Thanks again. This is a great site. I’ve never heard of this disease before, it’s great to have people to talk to about it.
Replies to "Thank you so much for your input. I’m just getting started with the nebulizer. Hoping that..."
Are you nebulizing saline 3 or 7% after your albuterol treatment? If so, the airway clearance following the neb treatments should help you bring up the mucous and hopefully improve your breathing over time. I’m about to turn 74 and am on the big 3 since January. My ID doctor has spaced the meds out during the day and so far I have been able to tolerate them. My symptoms prior were fatigue, cough and weight loss. Hope this helps.
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70 years old, diagnosed with mac lung 6 months ago, on the big 3. I think it is wonderful that you are trying to exercise with the oximeter. It has helped me get my lungs stronger, so I can do more. Any activity you can do is beneficial. If I am working out, my oximeter can dip to low 80's, so I slow it down and the oximeter returns to normal. My pulmonologist thinks this is okay. If I had to use oxygen to exercise, I think I would use it. The exercise makes me feel better, and has many health benefits.