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DiscussionHigh risk surgery. Is it worth it?
Neuroendocrine Tumors (NETs) | Last Active: Mar 29 11:38pm | Replies (40)Comment receiving replies
Replies to "just facts here and you will have to decide for yourself--- and this was ten years..."
I have been fasting now for a month. Not eating till 12pm each day. I have had improvements in my health and general well being.
I had chronic diarrhoea for months going sometimes 20 times a day. That has stopped and my movements are almost normal now.
I’ve lost 5 kilos in that time.
So fasting is great.
I don’t want to have the surgery, but feel if I get this one out I can use lanreotide to control any others that may develop.
Thank you for sharing your journey
Patrick, were your tumors NET’s? Who is your oncologist at Barnes?
I was diagnosed with a NET on the head of my pancreas. I am now seeing a NET specialist at Barnes and he has sent me to a pancreatic surgeon at Barnes. The plan so far is it wait and watch the tumor. I will see the specialist March 12, getting another scan to see if it has grown. I live just west of Washington Mo. Do you know of any groups like this locally here. There are two types of surgery for my particular Pancreatic Neuroendocrine Tumor(PNET ). A complicated Whipple Procedure with bad after affects or Enucliation which is less invasive. I’m told my tumor fits the criteria for Enuc except that it is too close to the pancreatic duct. So the surgeon at Barnes said she will not do Enuc. I am going to ask for second opinion from MAYO after result of this coming testing. So many unknowns and so many questions. My e-mail is, charlie@fidnet.com. If you were open to staying in contact that would be great and if not I understand. I am 71 years, grew up in St. Louis (Dogtown). Worked in St. Louis as a Sheet Metal Worker local 36.
Hope you continue to stay well.