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Welcome @bobcathunter, It can sometimes be difficult for doctors to diagnose the specific causes for neuropathy and many other autoimmune conditions. I agree with @barbbielor that you have to be your own best advocate for your health and learn as much as you can about your symptoms, condition and what treatments may be available. What has helped me be a better advocate for myself is to have a discussion plan along with some prepared questions for upcoming appointments to open a line of communication with my primary care doctors. One site I've found with a lot of helpful information is the Patient Revolution - https://www.patientrevolution.org/tools.
It sounds like you a few bad experiences with being diagnosed. Did you find anything that helped make things better?
Replies to "Welcome @bobcathunter, It can sometimes be difficult for doctors to diagnose the specific causes for neuropathy..."
How do you know if you have the right diagnosis? I had the spinal puncture and that was how I was diagnosed. But, I have a titanium plate in my neck and my back is full of herniated docs. L5, S1, T 11,, 12 & 13. Titanium plate fused together 3 docs in my neck. The vertebrae under plate is bad now to and giving me a lot of pain. So, with the spinal puncture completed, is that a confirmed diagnosis of SFN? Thank you
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I haven’t been helped yet but it has taken the last 20 years just to find a specialist that would actually look at my symptoms .