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Replies to "I am 68 now and have suffered most of my adult life due to more than..."
Neuropathy | Last Active: Mar 12 12:43pm | Replies (12)
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Replies to "I am 68 now and have suffered most of my adult life due to more than..."
Welcome @bobcathunter, It can sometimes be difficult for doctors to diagnose the specific causes for neuropathy and many other autoimmune conditions. I agree with @barbbielor that you have to be your own best advocate for your health and learn as much as you can about your symptoms, condition and what treatments may be available. What has helped me be a better advocate for myself is to have a discussion plan along with some prepared questions for upcoming appointments to open a line of communication with my primary care doctors. One site I've found with a lot of helpful information is the Patient Revolution - https://www.patientrevolution.org/tools.
It sounds like you a few bad experiences with being diagnosed. Did you find anything that helped make things better?