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wrong diagnosis

Neuropathy | Last Active: Mar 12 12:43pm | Replies (12)

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@barbbielor

I, too. was given a bad dx from a neurologist. She said my body wide contractures were psychosomatic. I knew that wasn't so. I eventually made an appt with another neurologist in the Movement Disorder Clinic. When I got there they wouldn't let me see the doctor with whom I had an appt. I was told I had to see the last doctor I saw. Unhappily I saw her. She not only told me again it was psychosomatic but that she banned me from seeing any other neurologist in that clinic. I had on my second concussion contractures go from neck down my right arm. After my third concussion these contractures went body wide. Very recently I was properly diagnosed with C3- C5 damaging my phrenic nerve causing my diaphragm to set off contractures depending on neck position. It took years to get that diagnosis and two very smart people, a PT and my pain management doctor. It pays to be your own advocate!

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Replies to "I, too. was given a bad dx from a neurologist. She said my body wide contractures..."

May I ask where you live?