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@tinae

I know exactly how you’re feeling the same thing happened to me I was on prednisone for nine months never at the level you’re at the most I was on was 60 and I went down to 2 mg after nine months but I also got those shots in my ear When my episode first happened that tinnitus put me over the edge I cried all the time and I told my mother I didn’t wanna live but then I realize that life is worth so I bought a sound machine I can send you one if you want I’m sure they have one there you plug it in next your bed and got 10 different sounds. I also have AirPods and calming things you put them in your ear and you try to take the focus off the tinnitus when you listen to waves or fire crackling And you just try to decompress. I know it’s my ears ringing every day and certain things make it worse. Stay hydrated reduce your sodium don’t drink alcohol or minimal don’t go in loud situations. It’s an adjustment. Trust me I’m not sure how old you are?
I finally been on side, makes it more bearable, because the natural noises are less intrusive than TVs and radios.
Again, I’m very surprised that they started you on 120 mg that is insane and yes prednisone it’s not good but it works and sometimes if you can take it and tape her down I would see if the shots would work for you. It’s a horrible situation, but I’ve been dealing with it for two years. You can get through this you can do it, you know have some support try to keep busy. Try not to dwell on it again put the AirPod and put one in one ear. I got hearing aids so I could listen to it because my hearing got so bad I needed hearing aids right now it actually got to wear I don’t need the hearing aids , I try to turn ceiling fans on noises so I can sleep with the tinnitus. The reason I asked your age is middle-age, so you also have the menopause that happens which part of the insomnia

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Replies to "I know exactly how you’re feeling the same thing happened to me I was on prednisone..."

I have the severe tinnitus. I was working 4 pm to 4am so I needdd something to block the light and noise, the Bluetooth sleep mask was my hero I downloaded shuteye app which not only recorded my sleep which helped my doctor with my sleep apnea I was able to play a soft sound to help me sleep.

Do you have any other rheumatoid problems other than the hearing loss/tinnitus? My cell counts and inflammation are satisfactory and tests show no autoimmune problems. Sudden hearing loss, like you, and very loud tinnitus are my main problems. What meds did you use right after the prednisone and did it help? Did you have any bad side effects from the injections? I’m worried the needle will damage my hearing more. After the injections, did you go straight to Humira and is that all that you take now? Did I understand you correctly that you no longer need the hearing aids now that you are on Humira? Sorry for so many questions. I’ve tried prednisone 60 mg taper, methotrexate with no lasting improvement. I just started a diuretic and Allegra for 3 months to try to reduce fluid in inner ear. Avoiding salt, caffeine, alcohol, chocolate, sugar. No result yet. Continue to lose my hearing with constant loud tinnitus. I can’t hear through all of the tinnitus! ENT not sure if cochlear hydrops with Meniere's or AIED. All other tests are clear. This is so frustrating and scary.