hi lilyann here,
i haven't been receiving my "mayo" emails. so lost with out them, so jumped on here by looking for mayo discussions
i can relate to each and everyone of these people on here. my vertigo started back in the 70's, had a bad spell and then off and on for years. now in my golden years its worst than ever. yes, i had the thyroid surgery, its been over a year on the 1st surgery and coming up on the 2nd 1/2 of the thyroid surgery. aggressive and still fighting. i wouldn't give you 2 cents for the radioactive iodine, let me tell you why.....that was may of 2023, i had the large dose, guess what's happening now.......i am having to have a couple of teeth pulled because the once strong teeth are now weak, then here comes this blisten on my leg, had it for months now, so itchy and painful, fills up and breaks and keeps refilling. as far as meclinzine, i wouldn't give you 2 cents for that either and evidently it isn't helping that other lady that keeps falling down with her dizzness, so that is very elementary to figure out. costco just charged me for 56 pills, $22, and that's with a discount, 12.5mg. and then had the nerve to tell my husband they could get them over the counter, 25mg. 100 ct. for $3.97. well, so before or after thyroid surgery i noticed no difference in my vertigo. i was told i could do those movements to move the crystals around, then i was told i could go to therapy. etc. i haven't went to a neurologist. i'm getting just too tired to even go to the monthly oncologist. so many pet, ct and ultrasounds and echo's. on and on we go and where we stop, we will eventually. i am still going to the ENT, she puts this thing down my nose to check my vocal chords, one was paralyzed before the first thyroid surgery, now the left one is barely moving and i can hardly speak. so yes, i am still here after my picnic, i wish all of you the best, i pray for everyone, we all need someone to pray for us. i was given 6 months to live, that will be next month. i really did not want to have the surgery in the 1st place but they said i would not be here now if i didn't. ok. thank you everyone for letting me rant. no, i am not feeling sorry for myself, as i am ready to go. i've lost my daughter and my son and another son has liver cancer. i love my husband to pieces and i do hate it for him. seems like we are hearing of more and more cancer stories. i know we are born with the cancer cells and then something triggers those cells. i don't think we will have all the answers until god lets us know. god bless everyone.
Wow…you have been on a tough road! I think things can get very confusing when there are different systems which might be having issues. I am curious if the ENT ever recommended going to an Audiologist? The statement about crystals in your ear and doing movements to try and dislodge them, sounded like a strategy that is given to people with Ménière’s disease. An Audiologist would diagnose it and he/she might be able to help you find relief. Maybe some of your issues are related to side effects from the thyroid medicine. I have been having a very hard time getting regulated on medication after my lobectomy and the side effects have been very difficult…..last week I thought I needed to call 911 from the issues! One of the side effects of a recent medication (Liquid Tirosint) was dizziness. I was off balance when I walked and had pins and needles in my fingers and toes…I had a lot of other side effects too. If you are dealing with a lot of “strange issues” maybe you can ask your doctor about your medication. My thyroid numbers have always been fine so it isn’t an issue with my thyroid and the medication kept my numbers in the normal range. However, I have noticed that when the medication brings my TSH to the lower end of normal, I had extreme side effects. Some medications resulted in so many side effects the quality of life is affected…..depression and sadness is a side effect that was noticeable on certain doses of medications. I think the right dose of the right medication FOR YOUR SYSTEM is quite difficult. Maybe you can keep a symptom diary and ask your doctor about changing your medication to see if things improve for you. Good luck!