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← Return to Tongue Fasciculations
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Brain & Nervous System | Last Active: Aug 11 8:06am | Replies (22)
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My mother was diagnosed with ALS in September 2023 and is now in advanced stages so I think onset was quite a bit earlier. In myself, I started noticing twitching in my feet (mostly right but a bit on left) and the twitching is now in my calves and a little in my left shoulder blade. Alarmingly, yesterday it started in my tongue. I have experienced twitching over the years but never like this or in my tongue. I am extremely stressed dealing with my parents. I am on only child and live 9 hours away from them by plane. I have been flying to see them once a month and have jet Lahr due to the 6 hour time difference. I am 54. Really hoping this is due to fatigue but should I be worried?
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@avc Chances are with that kind of travel time and the worry related to your mother, that stress and fatigue is a big part of this. But...you might consider asking your mother to have genetic testing done. I believe there is free testing available through some of the drug/research companies. Ask about the Ionis sponsored ALS Panel through Prevention Genetics. My husband is battling ALS currently, and we are determined to compile as much genetic information as possible for our kids and grandkids. Fortunately, we have not found any genetic components for them to worry about, but we do now have a genetic roadmap, that may be useful to them in the future, as more is discovered in the genetics field. Our ALS diagnosis took over 5 years, and if we would have more tangible family medical history, it might not have taken that long. Best of luck to you and your mother.