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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: 5 days ago | Replies (217)
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@teresaramirez

Of the 4 weeks of treatment, the first took 120 mg/day, the second took 90 mg/day, the third 60
mg/day and the fourth week 30 mg/day. And that's where I finished, yes, I stopped taking prednisone, and I've been without taking anything for almost 3 weeks. The episodes of tinnitus attacks, pressure and hearing loss, plus recovery (total fluctuation) began 2 weeks after taking the
cortiocides. I've been like this for a week now. My concern and doubt is whether I should take corticosteroids again or not. and if possible, do not start with a dose of 120 mg/day, because it is narcotic. but let's see...
How do you handle the days when the tinnitus is unbearable? It doesn't even let me sleep, and it makes me very depressed 🙁

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Replies to "Of the 4 weeks of treatment, the first took 120 mg/day, the second took 90 mg/day,..."
Becky, Volunteer Mentor | @becsbuddy | Mar 9 4:23pm

@teresaramirez I’m really having trouble understanding your steroid tapering. In USA we all taper slowly from 30mg to zero mg so we don’t have the problems that you had. I know you don’t want to be on steroids, but once you're on them, it’s important to taper slowly.
https://www.mayoclinic.org/prednisone-withdrawal/expert-answers/faq-20057923#:~:text=A%20gradual%20reduction%20in%20prednisone,a%20week%20to%20several%20months.
Your doctors may have an entirely different way of thinking and I certainly don’t want to contradict them. Just wondering if there is a connection between the steroid taper and the seizures you had.
Can you talk with your doctors about safe steroid use?

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