Wow sorry for what you're going through. Never heard of this condition. How old are you, and have you had issues with condtioation before this diagnosis?

It is what it is. I have had 5 abdominal surgeries starting with a burst appendix surgery leading to 3 incisional hernia surgeries.
Every time the surgeons go into your belly you can, and probably will develop adhesions. This could also be caused by redundant colon and adhesions.
I am to the point surgery is not possible anymore as my diverticulosis makes my colon too weak for more surgery and a resection. I have been to many specialist and surgeons to find I just have to live with my daily pain and discomfort. I am mostly on a liquid diet. Stay away from food that is difficult to go down the kitchen sink like beef, and stringy veggies.

40 years ago when I had my first colonoscopy, the gastroenterologist told me that my intestinal tract is 2 feet longer than normal. Is that Long Colon? I know I've been bothered with chronic constipation/nausea/bloating (and then every 3rd or 4th day horrible diarrhea) all my life, also my mother and her mother same thing. (Which of course, as soon as the medicos hear about mom and grandma, it's "Hereditary! Nothing can be done.")

I had a several impacted bowels before my colonoscopy in March 2023 and had to go to emergency because of the extreme pain. I then had my colonoscopy in March 2023 and about 10 days after that I started having obstructed bowels (3 times last year). I was hospitalized each of those times.

It seems very strange that my impacted bowels changed to obstructed just after have the colonoscopy but the GI specialists do not have an answer to that.

Obstructions have nothing to do with the colonoscopy. For some reason the impaction started you obstructed issues. Mine all started with a burst appendix in 2015.

My experience is that I’ve had a constipation problem all my life and I’m now 73.
I have sorted the At last …, it is a long and tortuous colon or redundant colon as it is often called.
I take a cosmocol sachet every day which draws water into the colon and fibre every meal but at breakfast a spoonful of chicory root fibre, plus seeds nuts fruit…
Also have gone gluten free… so far , it’s several months now I’ve had normal bowel movements daily..
Amazing 😀 try it..🤞😘

Yes, you are too young to have to live like that for the rest of your life. I am 76 and don 't want to live like this for the rest of my life and my life is probably way shorter than yours. Wish there were some answers.

Hope you can get some answers. If I lived in the U.S. I would certainly be leaning towards Mayo Clinic but I live in Canada.

Best I can tell from my redundant (long) colon is that it is not a problem when I am successfully tackling my IBS-C, which I do 100% now with my own "take" on using IBGuard, slippery elm (inner bark) tea, only a limited range of foods that don't cause problems including some Monash University App "green-light only" foods, a kiwi a night (you can find the study on stubborn constipation and kiwis), dietary enzymes for food intolerances (Intoleran brand) and pancreas enzymes, as well as both magnesium supplements and cognitive behavioral therapy for anxiety that stemmed from a trauma and was out of control.

And when I do the above, my rectocele doesn't bother me either.

Your path will of course be different. If a drug works well for you, so much the easier, yes? But I didn't want to try a prescription medication unless food and lifestyle changes worked. Also, I don't have Mayo Clinic or Cleveland Clinic in easy reach, travel-wise. My local Gastros are not confidence-inspiring and don't seem to focus on food or lifestyle changes, and I am definitely biased toward experimenting on my own and with food and what I deem (from experience/reading) as gentle supplements.

I also get up earlier in the morning so that I have enough bathroom time (sluggish colon still, but the kiwi is a game changer) to have a rather ordinary (good) day.

The slippery elm bark I can find is rather expensive. What brand do you buy? How much do you consume?