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High risk surgery. Is it worth it?
Neuroendocrine Tumors (NETs) | Last Active: Mar 29 11:38pm | Replies (40)Comment receiving replies
From what I’ve read Captem works best for tumours that are rapidly growing
Mine are very slow growing, which is why chemo doesn’t work for these tumours
Replies to "From what I’ve read Captem works best for tumours that are rapidly growing Mine are very..."
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Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now just capecitabine for the last 5. My primary went from 8cm x 6cm down to 3cm x 2cm. The innumerable lesions on my liver are mostly gone. I just had my scan on March 6th that showed no growth on a smaller dose of capecitabine for 5 months. My ki-67 is 8%. We will stay the course with capecitabine until my next scan in 4 months. I trusted my Mayo doctors, and did what I was told. It worked.