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Thank you for your advice. I did message my family Dr for a referral. Unfortunately it takes about 3 months around here to get into someone and that is if I’m willing to drive an hour away. I’ll continue to try a slower pace to taper at in the mean time.
Replies to "Thank you for your advice. I did message my family Dr for a referral. Unfortunately it..."
Hello @bren0718 do you live in USA ? I ask because you us the term family doctor, not PCP. to learn about PMR i suggest this site : https://www.pmrandil6.com/
Look at all the slides , under resources tab scroll down to the two videos. In UK , PMR is mostly managed by Primary care physicians- so not unusual - my experience was that my PCP would NOT increase my prednisone dose above 15mg, which is what i needed for 100% relief of morning pain and stiffness. I was able to see a rheumatologist in 1 month in Boston -area.
BTW @pb50 it is well recognized the PMR is an auto-inflammatory disease - not auto-immune.
the attached papers helped me understand PMR -
update on PMR 2022 JOIM-292-717 (update-on-PMR-2022-JOIM-292-717.pdf)
impediment to living life pone (impediment-to-living-life-pone.0126758-1.pdf)
Book the appointment and ask to be on their cancellation list. It took me 2 1/2 months to see a Rheumatologist but sooooo worth it.
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I waited 6 months to see the geriatric rheumatologist. In the meantime, my doctor had me on Meloxicam and that was all he would do. The orthopedic surgeon referred me to PT while I waited and that helped a lot, since I could barely walk at that point. But waiting for the right doctor is *totally worth it.*