My experience with corticosteroids has been that, during the 4-week treatment of prednisone 120/90/60/30 mg/day/week, my hearing did not improve even a single day, the tinnitus remained stable (medium level, bearable ) and the pressure is also bearable. Let's say that during treatment with corticosteroids I remained stable, without tinnitus attacks, and with stable hearing (with losses of 60-70 dB at 1000-500-250-125 Hz). Since there was no improvement in hearing, my ENT doctor and rheumatologist decided to wait to give another treatment. Immunosuppressants have side effects and now it seems that it is not worth it; The cost-benefit ratio is not worth it. but two weeks after finishing the corticosteroids, I have a seizure that lasts 1 day, and the next day I recover hearing and tinnitus practically disappear. So 2 days, and crisis returns although without dizziness. The next day again fine. So I don't know whether or not to go back to taking corticosteroids. My ENT tells me to choose, that this is just a matter of trying and seeing, but I didn't like the insomnia that the corticosteroids caused me.

It is extremely difficult to accept this type of disease.