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BCG Treatments - Bacteria in my urine

Bladder Cancer | Last Active: Mar 12 3:00pm | Replies (11)

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@sepdvm

I understand your concern @caflynnr1. This is one of those circumstances where the judgment of our medical providers is so important. They are likely weighing the risks of delay with the risks of continuing treatment during a true UTI. We have to hope they make the best decision for our care. Unfortunately medicine is not always black and white, but frequently shades of gray, so personal opinion, past experience, conservative vs aggressive practice style all come into play as well. Please keep us updated as you continue your treatment.

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Replies to "I understand your concern @caflynnr1. This is one of those circumstances where the judgment of our..."

Hi Sue,

I met with my new Dr. last week and gained some insight.

I never see the Dr when treatments are given. They are administered by a Nurse and the Urinalysis is not shared with the Dr unless there is a UTI only known after growing the culture for 3-4 days. Although I shared my concerns about delays in treatment to the Nurse requesting what I can do to reduce the bacteria each time, the answer was always nothing she was aware of.

The new Dr asked me if anyone had discussed options to avoid delay in treatment to which I told her no, that I ask every time there was a delay. So....it became apparent to me the Nurse should have been relaying my concerns to the Dr and never did. There lies the problem, LACK OF COMMUNICATION between the Nurses and the Dr! The new Dr prescribed a lose dose Antibiotic to get me through my last 2 treatments, now am down to 1! YIPPEE.

Bottom line, keep being your own advocate.... I should have been more insistent that the Nurse contact the Dr with my concern! Lesson learned!!!