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My Husband's diagnosis of glioblastoma grade 4

Brain Tumor | Last Active: Mar 16, 2024 | Replies (17)

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@richardrollins

My sweatheart right temporal lob Glioblastoma high grade. 11/102022 6cm surgery removed tumor no visible sign but molecular residual recurrent smaller tumor 1cm tumor free
11/10/2023

Recurrent tumor 02/24/2024 fighting this now.
42 days of radiation, then 10 days of radiation.
12 rounds of chemotherapy
Zerabev infusion every two weeks, gliostein with temodor 5 day cycle every 42 days.

Plus Optune device for 12 months.

Kepra anti seizure drug. We stopped using the Optune device and weaned off everything except temodor.

Very successful we were reducing Kepra for Physicsl Therapy. Now on Vimpat.
Never had a seizure until 4 weeks ago. Small or what could have been a seizure was the beginning of the new tumor.

Optune worked, but you have to be diligent about its use. Never had a problem with the device at all.

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Replies to "My sweatheart right temporal lob Glioblastoma high grade. 11/102022 6cm surgery removed tumor no visible sign..."

Welcome, @richardrollins. So nice to meet you and your sweetheart. I love the bright colors of smiles and balloons in the photo.

How is she doing on Vimpat?