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DiscussionDiagnosed with SCC on base of tongue
Head & Neck Cancer | Last Active: Mar 18 11:49am | Replies (31)Comment receiving replies
Replies to "Thank you all for your responses so far! We just returned home from radiation #15 out..."
I have had the exact same cancer as your husband. I’m almost 1 year since treatments and getting better every day. I hate to say it, but things will get worse. Be the person for your husband who helps him, not force him to do what you want or expect while in treatment. I wouldn’t eat, but knew when/if I needed a feeding tube. That’s the most difficult part-people letting us decide what we need. Eating is the most challenging and will be for a long time. Food tastes horrible and I used to love to eat. Even after a year I still don’t care for meat and things are too spicy for me. I used to use hot sauce like it was ketchup. Just don’t pressure him even though it’s killing you not to help. I still have several “leftovers” from the radiation. Buy Aquafor pronto for his neck and start using it immediately. My neck was horrible after about 4 weeks. Tell him I said he’ll need a lot of time and patience, but things do get better. We have a very curable cancer, so even with all of the pain and stress we will survive. Sending you both prayers for strength!
Hi @rakga Thanks for the update. I know how much this can turn your world upside down. It's not an easy fight, not impossible either. One day at a time. Expect after radiation is over he likely will continue to feel worse for a few days to a couple of weeks before the uphill return to normalcy.
Rent some movies to take his mind off how he feels. Or perhaps a good card game or jigsaw puzzle. Keeping the mind on other things can help a lot with how he is feeling. For me having friends and family visit was nice for about five minutes but my desire to not be the center of attention soon overwhelmed. It's hard to put on a happy face when you feel like you have been hit by a bus. I certainly understand your need for support however. And please feel free to ask anything of this community Courage and good healing.