"How were you able to work better with your doctor?"

I fired my PCP after it was clear that he was going to be more barrier than partner. He resisted changing his diagnosis even when presented with symptoms that did not fit his 'sports injury' theory. So here, I would say 'fire doctors who do not listen.'

"How did you get heard with a doctor who seemed unwilling to believe you?"

I think the better question is "how do you find a doctor willing to believe you?" First, read reviews and pay particular attention to negative patterns. 'Spends the time,' felt listened to' are good. Doctors who also teach can be valuable; they're often well-informed on new developments and may have read studies your standard PCP has not.

"What tips?"

Assemble a good team of curious, diligent doctors. Do your own research, read studies, and don't be afraid to ask your doctor to try things. Push for novel treatments if you're comfortable with them. Be proactive; your doctor SHOULD be working on your case offline but keep them active and engaged.

Don't give up.

When I find a doctor who is willing to "THINK" and be serious about figuring it out - I will let you know...Just saying, I have been to my GP, 3 Cartiogolist, a pulmonologist, and so much bloodwork and CT scans.....it is unbelievable.....NOTHING is from all the results and I get no suggestions as to where to go from here... just silence....