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High risk surgery. Is it worth it?

Neuroendocrine Tumors (NETs) | Last Active: Mar 29 11:38pm | Replies (40)
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@lindabees

It sounds like you’ve come a long way! Has there been any discussion of using captem to try to shrink that tumor hopefully to a point that it is easier to remove?

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Replies to "It sounds like you’ve come a long way! Has there been any discussion of using captem..."
ant12 | @ant12 | Mar 8 2:55pm

It hasn’t ever been mentioned by my oncologist
It seems treatment here in Australia is very conservative but I will ask and research that. Thanks

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gig666 | @gig666 | Mar 9 2:01pm

I have had nodules in has of lu mgs 6+ years, scanned for 4 years, then said no need for more, nodules were stable. Through abdominal CAT scan, they noticed one in each lung grew, not alot! But l was suffering from NETS for 10 months before, worse being my gout, large colon major diverticulitis, 10 polpys. Flushing is worse, breathing l gasp for air. Excruciating colon rectal pain, which my G.I. I contacted 21 days ago, everyone is waiting l guess for this Pet scan. Which got cancelled Friday, rescheduled for Monday.
Help, head me in right direction, My oncologist watching my BED numbers creep up! Last August l had 4 iron count, had 8 infusions and my RBC. numbers started climbing, my iron is steady.

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gig666 | @gig666 | Mar 9 2:12pm

No conversations!! Maybe after this PET. Scan. The two larger nodules are not that big. The surprise was all the tiny Nets floating around.

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