← Return to MAC/NTM is Different for Everyone, Treatment might be different too

Discussion
Comment receiving replies
@sueinmn

I may come from a slightly different perspective, where I do not expect the physician to provide much detail - that used to be the province of the "wise and loyal staff nurse" who has gone the way of the neighborhood druggist, the milkman, and the mechanic in the corner gas station.

I got my best instruction on airway clearance, sputum samples and other things MAC from my first pulmonologist's experienced RN, who he was only able to keep by threatening to quit our clinic (both have since retired.)

Now I go to a "specialty center" within our network, where there is one respiratory therapist for five docs, one RN and one PA to assist them with all that must be done. The nurse and RT earn exactly half of what they would be paid in the hospital, so needless to say, there is often turnover. The PA's generally only stay until their "spot" opens up in medical school. And the doc is allotted 30 minutes for each patient -including a pre-read of often extensive medical history and completing their notes (one hour for an initial consult, 20 minutes for a "simple follow-up").

I am fortunate to have this forum, ability to sift through technical research, and the time to do it.

Please understand that the "Big 3" are less scary than cancer treatment, life with diabetes, and many other conditions. No denying it's unpleasant, but the alternative of losing lung function or even part/all of a lung are far worse.

Is airway clearance working for you to keep the infection tamped down?
Sue

Jump to this post


Replies to "I may come from a slightly different perspective, where I do not expect the physician to..."

Yes, so far! I am thankful for that! I have much to be thankful for at this point. Airway clearance is an important and a basic first line of care with all this pulmonary stuff.
I am thankful I have enough knowledge and common sense to be able to discern when a physician simply just does not know or does not care enough to provide accurate diagnosis and care.
I am also thankful I now have a pulmonologist that is knowledgable and does care enough to provide an accurate diagnosis and care. It is like night and day.
Appreciate all your research also. You seem to come up with info that I have not seen or been able to find. Such good info gets exchanged on this Mayo Clinic site.