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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)
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@teresaramirez

Hi again! @poc1115 @seniormed , how are you?
What treatment are you following?

I finished my prednisone cycle two weeks ago and I am having days of almost 100% hearing recovery with days of loss again and with very very high tinnitus and pressure and blocked ears.

Do corticosteroids take effect a few days after finishing the treatment?

Thanks a lot!!

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Replies to "Hi again! @poc1115 @seniormed , how are you? What treatment are you following? I finished my..."
tinae | @tinae | Mar 8 7:47am

Hi - in my experience no, once you stop the treatment or you’ve tapered that result is pretty much what it is at least that’s how it’s been for me obviously everyone’s different.

The fluctuation is a big part of AIED.

Maybe you could have your ENT recommend recommended rheumatologist and try some of the anti-inflammatory medication’s out there good luck keep me posted.

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