Hi all, Just giving an update on my husband who was diagnosed with GFAP December of 2022, but started with symptoms in the spring of that year. I was the one that started this discussion.
As of now he is still mobile. He never regained his normal walking, still having balance issues and uses a cane, but we are thankful he is walking. His spine has a lot of issues, not sure if it was due to the long term prednisone usage.
He is now seeing a chiropractor who treats with gentle chiropractory.
He has not gotten his taste or smell back since stopping prednisone and has never had Covid.
I am a bit concerned as of this reply because he seems to be having involuntary leg movements at the end of the day when he is resting and sleeping. This is what happened before he was hospitalized 2022 because it then went into him not being able to walk.
I wish everyone in this discussion to be able to deal with this unusual rare disease. Keep positive and strong.