Welcome to Connect @willismohr. My husband had a radical cystectomy and neobladder formation due to recurring invasive bladder cancer in December 2021 at Mayo Rochester. Unfortunately I was not able to find much information from patients with similar surgeries on Connect at that time. We experienced a lot of complications after that surgery, so then I shared our information on Connect in the kidney and bladder group, hoping to help others come together with their experiences. My husband is unfortunately not on Connect. He could certainly share the fun of having a nephrostomy tube coming out of your back, as well as now having to self cath a few times a day. These type of surgeries and recovery are not for the faint of heart. Your special forces experience may have helped to prepare you for all of this. I hope the Connect community can join in but if I can answer any questions or pass them on to my husband, please let me know. And congrats on 51 years!

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