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← Return to Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
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Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
Post-COVID Recovery & COVID-19 | Last Active: Mar 15 10:56am | Replies (17)Comment receiving replies
@janeaddams @mbryant1380 Thank you for the support!
I appreciate it and am sorry to hear, from your accounts, that you also face the challenges I mention. As a medical professional, I resort to keeping myself well-informed through regular and high-quality scientific literature reading. However, despite this strategy to feel less hostage or victimized by the symptoms, time passes, and I do not perceive encouraging news for the medical scenario. Much has been researched, there are theories and trials, but nothing provides me with any assertive perspective on what my prognosis will be for the next month, the next year, or a lifetime. I feel that I've lost parts of myself, mutilated like a flower losing its petals one by one. This is the image I have of myself today – parts that have been mutilated in terms of potentials and experiences. With each recurrence, a new part is left behind, so I no longer feel like who I was, nor do I sense that I am becoming anything creative or positive in any aspect. I am struggling to comprehend the idea of almost invalidating myself due to terrible limits that fluctuate but systematically return. I appreciate this space and the courtesy of everyone. I hope that, as soon as possible, we won't need this channel anymore to vent part of the suffering, which seems to be of overwhelming loneliness, as even those closest to us lack the perception of what we are experiencing in terms of mourning for difficult losses of parts of ourselves that were dear to us.
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Jane - I do the same - stay up to date on peer-reviewed research. My frustration there, is that it mostly seems to be focused on proving its existence and the need for more research. Yes, we need research on how to treat it! I, too, feel like a different person. Every day I seem to face a new challenge from my cognitive impairment and it is frustrating. You are young - which makes it so much more difficult. I did notice, though, in your post, that you are a talented writer. I would encourage you to consider pursuing this. You might be the one to reach those that need to hear our stories - all similar but unique, all in need of answers, validation and encouragement.
I did not sense I was becoming anything creative until something interesting happened. My 30+ year old disabled daughter said she wanted to try painting. I told her I would try it too! I have NEVER painted outside of art class in high school. I tried to create a beautiful picture once for my mom (while in high school), and when she saw it, she asked, "What are you, 5?" So, at 63 I tried it. Viewing you tube tutorials showed me I knew NOTHING! I was anxious and terrified. I very quickly realized I am not an artist. However, I also realized I not only enjoyed it, my work wasn't horrible. I also took up crocheting again. Crocheting, which I've been doing since I was 10, pushed my brain to its limits. It takes me way longer with lots of re-dos and rip-outs. However, those two things have allowed me to fill that creative need I was missing since not being able to continue in my job. You are young and talented. Your creativity might not look the same as before, but it's there, waiting to be discovered.