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MAC/NTM is Different for Everyone, Treatment might be different too

MAC & Bronchiectasis | Last Active: 1 day ago | Replies (99)
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@curlycuechristine

Thank you Sue. I was just diagnosed yesterday with MAC/NTM and am very overwhelmed at a lot of conflicting information. I'm very much a logic/information person who then makes decisions based on the latest information I have. I appreciated your calm and pragmatic approach with getting information and understanding that it will be unique to each person. It can be a lot of "noise" to sort through, and I appreciate the links and information.

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Replies to "Thank you Sue. I was just diagnosed yesterday with MAC/NTM and am very overwhelmed at a..."
Sue, Volunteer Mentor | @sueinmn | Mar 7 4:34pm

The "noise" and conflicting information are what brought me to Mayo Connect almost six years ago. Welcome to a club nobody would choose to join - but I'm very glad we are all here together to support one another.

My three mantras, learned at the hands of two excellent doctors are:

"Daily airway clearance, with saline nebs and/or a bronchodilator if indicated, is a valid form of treatment for some people with MAC. When it isn't enough, it's time for the "big guns" - antibiotics. They are difficult, but not to be feared."
"Bronchiectasis is a disease you live with, not die from. You need to figure out what works for you and keep going. Take reasonable precautions and get on with living. Don't let fear get in the way of living your life."
"MAC/NTM is everywhere. You cannot eliminate exposure unless you literally live in a sterile bubble. Figure out which risks are the highest for you and minimize them. Ignore the rest."

Feel free to ask questions of any of us at any time. We were all new at this one day.
Sue

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