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Head pressure is ruining my life

Brain & Nervous System | Last Active: Apr 2 2:20am | Replies (28)

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@milesmy

Hi. I know you posted this a little over a year ago but have you found any relief? I also suffer the same exact thing as you described. All of it to a T. It started suddenly in Nov 2023 and I have zero history of any headache issues. No head trauma or anything not even from years ago. All testing negative and the pressure is so severe and the distress and sickness this has caused me has caused my BP to go as high as 220 but Dr's are insisting this is not BP related. I've been to the ER more times in the last 2 months than in 20yrs and not even the IV cocktails do anything. I spent the entire month of Jan 2024 bedridden because I couldn't even tolerate sitting up. My vision is so bad I can barely see my work computer screen and I worry if my vision is going to be permanently damaged over this. I am scared I'm gonna lose everything over this. I've been at my job for 28yrs ..I'm 55...I can't lose everything over this and I can't afford to live on SSDI and they would probably deny my claim...on top of this I have debilitating back pain with herniated disc's, spinal stenosis, and arthritis so on top of it all I've lost much of my ability to stand or walk. I cannot handle both of these issues. I'm seriously losing my will to live over this. They put me on Quilipia and for a couple of days I had a little relief until I woke up this morning with it as severe as ever. As it stands I maybe get a day or 2 but then it returns and lasts for weeks non stop. 3 months and I just can't do it. I'm just trying to see if a sleep study/cpap will also help.

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Replies to "Hi. I know you posted this a little over a year ago but have you found..."

Hi @milesmy. So sorry experiencing all that. My personal opinion after developing apnea post covid of over 20 episodes an hour, please try to stick with it if cpap prescribed. It can be frustrating finding all the answers while your body adjusts on all levels and hopeful you will glean the benefit of its oxygen and sleep! 🌈