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Appropriate standard of care or just poor treatment? What can I do?
Prostate Cancer | Last Active: Mar 20 9:00am | Replies (15)Comment receiving replies
hi My PSA has been .01 for almost 21 months . I am now starting in on the last 3 months of lupron. He did not offer any advice regarding the idea of out dated equipment, I can say I already know it was the wrong equipment it should have been SBRT and he used IMRT a very different approach as I am told . There was no informed consent he did not mention any of this leading to the treatment . He had my current PMSA Pet Scan to go by and from the dialogue I had with him he never looked at it. There were locations identified. There was 1 suspect lymph node. The region was mentioned in the final conclusion .
Replies to "hi My PSA has been .01 for almost 21 months . I am now starting in..."
Not only should you "fire the guy", you should look into suing him. He took money, knowing that it probably wouldn't work for you. Other potential patients need to be protected from him.
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It sounds like you need to fire that guy and find a center of excellence with more than one radiation oncologist/radiologist who knows what he or she is doing and has done it many, many times. I realize that Fairbanks AK is a location that makes it difficult to go elsewhere. It might be worth the trouble and expense to fly to MSP and seek help at Mayo Rochester. You could send images and lab results to Mayo in advance, do some initial consults via telehealth, and then get in-person appointments in Rochester. Another option is the excellent cancer care consortium in Seattle. Good luck and don't hesitate to advocate for yourself!