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← Return to Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
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Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
Post-COVID Recovery & COVID-19 | Last Active: Mar 15 10:56am | Replies (17)Comment receiving replies
@janeaddams is absolutely correct, it is not much better here in the U.S. I’m here in NYC and there are some LC Recovery Clinics and they do at least acknowledge that what I’m experiencing is real. My PC doctor doesn’t, his approach is to eliminate what it’s not before he MIGHT consider its LC.
I also for the first couple of years was going to multiple specialists and was told, it’s hormonal and/or anxiety. It was so frustrating and scary because I knew something was wrong! It wasn’t until a family member mentioned Covid, and to look into LC. So I did my own research through that I found this site and a couple of LC Clinics.
I went last December and the LC doctor said I did have Dysautonomia (POTS) “like” symptoms which he does believe was brought on by Covid. He said it has been a common disorder most people who had Covid are suffering from. He also said it being theorized that there could still be remnants of the virus still in some people causing symptoms, why?! They just don’t know yet.
So do I feel better symptoms wise, absolutely not, it did give some sort of comfort knowing I’m not imagining it all, a little.
It’s so many of us feeling lost, and left behind, it’s a struggle for me every single day! I grieve a life I no longer have.
I pray we all are healed, healthy and happy again!
Wishing all the best!
Replies to "@janeaddams is absolutely correct, it is not much better here in the U.S. I’m here in..."
Hi there...agree with you that, even here in NYC, where I also live, LC flies under the radar. My docs essentially blew off considering it as the cause of chronic symptoms since my second bout a year ago, including dizziness I never had before. Just made two appointments at the NYU Langone LC Clinic (neurology, rheumatology). They won't happen for a while, but what else is new? Have you had any experience there? Of all our hospitals, NYU is my top choice in every other way. Thanks! I join the collective prayers for good news and restored good health for us all.
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To me, the hardest part of LC is the lack of recognition from doctors that it is real. I can understand it in the beginning. I got covid in March 2020 and the symptoms never went away although a few have improved. It really throws me that now, 4 years later, there are still doctors who say the symptoms are stress-related. This is after being diagnosed with POTS, orthostatic intolerance, PEM, ME/CFS, cognitive impairment as well as others. If my symptoms are all stress-related, those diagnoses (which were based on test results) are real or based on the doctor's stress? I have stopped grieving the life I used to have. I very much miss the brain I used to have. I am so thankful for my faith in Jesus Christ, and for my supportive husband. I am trying to focus on figuring out how to live a life that contains only about 4 hours of productive time a day. I think it's hard for doctors to be faced with such a pervasive illness that is all mystery at this point.