I was also diagnosed with ILC 6 6 years ago on my left breast and opted to do a mastectomy with reconstruction. I tried tamoxifen 3 different times but I felt very dark and gloomy with terrible joint and muscle pain. After talking with my doctor who told me my risk would go from 7% to 4% by taking tamoxifen, I decided to not take it anymore. However, in January 2024 I had my annual mammogram which detected a small spot on my right side. After the biopsy it was confirmed that I once again have ILC in my right breast - stage 1 and the MRI does not show that it has spread and the type of ILC is similar but not the same as the first ILC I had so it did not spread from my left breast. Chemo and radiation are unlikely but we will know for sure once the surgery is done. I am going to remove my implant on the left breast, have a mastectomy on the right breast (I just can’t have anymore scares with the mammograms) and have a DIEP flap to reconstruct both sides. I wanted this surgery the first go around but the plastic surgeon said I didn’t have enough fat (which I thought I had more than enough) but thanks to age and menopause I now have enough to reconstruct both sides. I didn’t realize all these years I was feeding and growing my new belly boobies. I will once again try the hormone medication and hopefully because I’m in menopause the different drugs will not affect me as much. Good luck to you in your journey. I’m sorry you are having to go through this!!!!