Malabsorption Syndrome Questions

Posted by kidprodigy @kidprodigy, May 5, 2020

Has anyone here suffered from a malabsorption syndrome? If so, what is/was the cause and how were you diagnosed?

I ask because I’ve been dealing with a 60+ lbs weight loss, chronic fatigue, abdominal pain, nausea, low grade fever, chills and night sweats for the past 7 months. No doctor has been able to diagnose me and no matter which medication I take, I cannot get relief!

My symptoms fit a malabsorption syndrome of the small bowel. My reasoning behind this is the abdominal pain kicks in within an hour of finishing a meal and subsides within 1-2 hours.

Aside from autoimmune diseases, what infectious agents would cause malabsorption in the small bowel?

Thank you for your time! 👍🏽

Interested in more discussions like this? Go to the Digestive Health Support Group.

I'm not sure what exactly is going on?
It all started with an acid reflux diagnosis that I'm not sure is right
But over the last 2 months it's getting worse
New symptoms include
Distorted vision
ringing in the ears
Excessive hair loss
Ridges in nails
Red palms
Pain in left side of stomach near belly button
Problems concentrating
Extremely tired all day
Floating stools over 2 months
Dry nose
Red eyes
Can anyone please help thanks

REPLY
@pleasehelp11

I'm not sure what exactly is going on?
It all started with an acid reflux diagnosis that I'm not sure is right
But over the last 2 months it's getting worse
New symptoms include
Distorted vision
ringing in the ears
Excessive hair loss
Ridges in nails
Red palms
Pain in left side of stomach near belly button
Problems concentrating
Extremely tired all day
Floating stools over 2 months
Dry nose
Red eyes
Can anyone please help thanks

Jump to this post

You share a number of features with me of a off (in my case hypothyroidism) thyroid level. Even if you have had that checked say two years ago, it can change within that time frame as it did with me (A thorough thyroid check entails a number of labs, so it behooves anyone to read up on it). I have read repeatedly that one autoimmune disease makes one more susceptible to others unfortunately. What I have learned on my own health journey is that people with hypothyroidism often have low stomach acid levels and the symptoms of low and high acid levels are said to present similarly. I have personally found it takes patience and reading and/or the good fortune of having a gifted healthcare provider to sort matters out. I found some replies to the recent post on this site "Anyone else gone gluten and dairy free to help improve symptoms" by eileenb1022 quite interesting. I wish I could be of more help to you, I am no stranger to the frustrations.

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I have severe autoimmune atropic gastritis in stomach and also gastroparesis. I drink nutrition and have a nutritionist. It seems I am not absorbing the nutrients or my body is getting them and not using them. Anyone else have this and if so, what do you do about it?
I am losing bone and muscle like crazy even with a diet that ought to be great.

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@gastrogirl

I have severe autoimmune atropic gastritis in stomach and also gastroparesis. I drink nutrition and have a nutritionist. It seems I am not absorbing the nutrients or my body is getting them and not using them. Anyone else have this and if so, what do you do about it?
I am losing bone and muscle like crazy even with a diet that ought to be great.

Jump to this post

Hi @gasatrogirl, I moved your question about malabsorption to this existing discussion:
Malabsorption Syndrome Questions: https://connect.mayoclinic.org/discussion/malabsorption-syndrome-questions/

Here you can read the previous helpful posts and connect with @pleasehelp11 @kidprodigy @astaingegerdm and @linh

This related discussion might also provide some insight.
- Celiac: Anyone have any experience with malabsorption? https://connect.mayoclinic.org/discussion/celiac-and-malabsorption/

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I do. It's actually left me with a "Failure to Thrive" terminal diagnosis post gi surgery, stomach and esophagus removal.
I have literally changed bc of this. Mine is proten/caloric malnutrition and malabsorption. The worst, most disgusting, exploding chronic diarrhea and passing obnoxious gas constantly. The diarrhea has resulted in anal fissures both anterior/posterior that will not heal bc they never get the chance to. It's taken away my dignity, embarrassed, grossed out by my own self and forget having any girly class. I have to clean the toilet constantly. Uncontrollable weight-loss, no nutrients/vitamins being absorbed through oral intake. Had to have a Jtube placed, body rejected it, then put on TPN through a central picc line until 3 weeks ago, when I decided to stop treatment. I take both Creon and Linzess but neither help much.

REPLY
@pleasehelp11

I'm not sure what exactly is going on?
It all started with an acid reflux diagnosis that I'm not sure is right
But over the last 2 months it's getting worse
New symptoms include
Distorted vision
ringing in the ears
Excessive hair loss
Ridges in nails
Red palms
Pain in left side of stomach near belly button
Problems concentrating
Extremely tired all day
Floating stools over 2 months
Dry nose
Red eyes
Can anyone please help thanks

Jump to this post

Do you have vision issues such as everything having a yellowish hue or like a film is cover your pupil that you can't wipe away, decreased night vision and total vision decreasing?
The cognitive changes, can't concentrate, retain info brain fog, out of blue struggle w problem solving or crisis management/decision making difficulties, feel dumbed down?
Extreme fatigue all the time, are your stools, smelly and orange in color or yellow?
If so, I have been diagnosis with malnutrition with malabsorption. And could probably email message with you why and how it started for me, who diagnosed it, how it was diagnosed and what treatment I've tried, if you're interested, feel free to message me anytime. I feel your pain, it controls every working system, all the way to consuming symptoms and silent suffering.

REPLY

If you have not had a DNA check for genetic reasons why you don't absorb nutrients I wound up with B6 and B12 toxic levels because I lack the enzyme that converts the B vitamins in the stomach into the usable form I stopped taking 5,000 Vitamin B12 and symptoms got better peeling skin on my hands stopped started taking
L-Methylfolate Metabolically active form of Folic Acid and am much better now. But you have to ask for it doctors don't think of this my doctor would just act like well where are you getting all the vitamins from instead of looking at why my system was not using the vitamins. My system in the past would flush the excess B12 out in urine but stopped for some reason but all labs with my kidneys show good numbers so it's anyone's guess.

REPLY
@linh

You share a number of features with me of a off (in my case hypothyroidism) thyroid level. Even if you have had that checked say two years ago, it can change within that time frame as it did with me (A thorough thyroid check entails a number of labs, so it behooves anyone to read up on it). I have read repeatedly that one autoimmune disease makes one more susceptible to others unfortunately. What I have learned on my own health journey is that people with hypothyroidism often have low stomach acid levels and the symptoms of low and high acid levels are said to present similarly. I have personally found it takes patience and reading and/or the good fortune of having a gifted healthcare provider to sort matters out. I found some replies to the recent post on this site "Anyone else gone gluten and dairy free to help improve symptoms" by eileenb1022 quite interesting. I wish I could be of more help to you, I am no stranger to the frustrations.

Jump to this post

Thanks so much for the info on hypothyroidism. I also have lpr reflux and thyroid issues. I will research and look into low acid not high etc. Appreciate ur input.🤸‍♂️💕

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After spending 26 hours in our ED and having an ultrasound and two CT scans and the results that there was only one problem - one not so large gallstone that does not cause me any difficulty- pain or otherwise, is it possible that that one stone is sitting atop of my bile duct? I have lost 33 pounds in avery short time and the surgeons don't know why I can't gain any weight back. They have discussed taking the stone out on an outpatient basis and seeing if this is what the problem is. If this is done and I still can't weight what do I do next?

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I will mention that I have recently been diagnosed with GERD. Up until several months ago I weighed 163 lbs. and I am down to 134 and look like a waif. I was a semi-active 79-yr old female who was generally healthy, or so I thought! Something is wrong and the surgeons here cannot figure this out. I need to gain weight to live.

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