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How it all began?

MAC & Bronchiectasis | Last Active: Mar 6 1:10pm | Replies (28)

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@virginiae

I too was diagnosed with Bronchiectasis after a bad bout with pneumonia last year. About a year before that I had been diagnosed with Sjögren’s syndrome, which is a risk factor. I had my Sjogren’s symptoms under reasonable control until the pneumonia hit and then the jolt to my immune system slammed me with a Sjogren’s flare, which sucks all the moisture out of you and made recovery more difficult. I have had 2 sets of cultures and haven’t grown any NTMs thus far, but this seems rare and I feel like a sitting duck for an NTM, so I am taking as many precautions as I can. I use an Aerobika but can hardly ever get sputum out unless I’m sick. I’m seeing a new Pulmonologist tomorrow and plan to discuss nebulizing - if that’s what I need to do to stay healthy I’ll absolutely go there. Thankful for this group.

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Replies to "I too was diagnosed with Bronchiectasis after a bad bout with pneumonia last year. About a..."

I'm not sure what NTMs are (and maybe don't want to know : < ) I don't want any more to deal with than this BE, which is enough. Sorry you have that extra health issue. I use a nebulizer and find it helpful, if only just as a very relaxing process that will thin the mucus, but I don't get much out of the Aerobika. Quite a few other people on this site seem to really like them. Mostly, I have to do positional exercise ( basically, it's the floor yoga pose where you lay on your back and elevate your legs above your head. If you are okay doing it, it is fast and pretty effective in helping to get the phlegm to release to be expelled). Fun stuff, I know. Good luck to you, and yes, I am also grateful to have this group to communicate with.