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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Welcome Susan @susan0514, The Facebook group for the protocol does have a website. You don't have to use Facebook but a lot of members on the protocol use Facebook for the research and sharing. Their website has gotten a lot better and they have added a lot of their background/research information along with frequently asked questions (FAQs) - https://theprotocolworks.com/. They do have a Why the Protocol answer in the FAQs but the research listed doesn't have the hyperlinks to the articles. I added those and shared the document in another post here if you want to read the research - https://connect.mayoclinic.org/comment/957496/.
It might be helpful to print out the Why the Protocol document in the above link and share it with your neurologist/doctor. Can you share an update after you see your new neurologist?
Replies to "Welcome Susan @susan0514, The Facebook group for the protocol does have a website. You don't have..."
Thank you for the link to the website. The testimonials are very encouraging! I wish the cost of The Protocol wasn't so high. I will definitely print out the document and discuss it with my new neurologist when I see her next month for the EMG.
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John, thank you so much for these links. I liked my new neurologist and was impressed by her thoroughness. I'm going to have another EMG - it's been many years since the last one - with her in early April. My reflexes have deteriorated since my last neurological exam, but other aspects of the assessment were encouraging. I'm definitely glad I've made a point to stay physically active -