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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@hopeful33250

Hello @sophiarose,

I'm sorry to hear that your MRI results were not what you had hoped for. I can only imagine how disappointing that was for you. Your journey with NETs has been filled with lots of different treatment modalities and I commend you for venturing out and being proactive with this disorder.

I see now that your next step will be PRRT. We have several discussion groups where this has been discussed. In case you would like to read about other members' experiences, here are some links to those discussion groups?

--Interested in Hearing People's Experiences with PRRT
https://connect.mayoclinic.org/discussion/prrt-treatment/
--My Husband Has Had His Second PRRT and Is Doing Well
https://connect.mayoclinic.org/discussion/my-husband-has-had-his-second-prrt-and-is-doing-well/
I would appreciate you posting as you proceed with PRRT. Do you have a date for your first PRRT treatment? Will you post updates as you can?

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Replies to "Hello @sophiarose, I'm sorry to hear that your MRI results were not what you had hoped..."

I don’t have a date yet
I am being told 3-4 weeks due to insurance and ordering the dosage
I will keep you posted
I will be on the support group Thursday as always
Thank you for your support