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Anyone have chronic diarrhea while on digestive enzymes?
Pancreatic Cancer | Last Active: Jul 8 11:10am | Replies (29)Comment receiving replies
I take ZENPEP. I had chronic diarrhea. I learned from this blog to take Imodium AD three times a day. After two dys the diarrhea stopped. I also raised my Zenpep from 20,000 units per everything to 40,000 units and that is working fine. I didn’t ask the doctor, but told him what I was doing and he said it was all right. My recovery consists of a lot of experimentation. If a food doesn’t work, I never touch it again. I have a same boring diet every day; however, rarely any problems unless I get upset.
Good luck. It’s a long journey to fit it to your individual needs and what your body will accept. You will get there with perseverance!
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I've been taking Zenpep for a few years. It costs thousands of dollars per month. And yet, all it is, is a tiny amount of pig pancreas.
The recommended dose for a small weight adult (117-179 lb) is 40,000 per meal. The recommended dose for a larger adult is 60,000 per meal.
I'm indignant. I've been limping along all this time on 25,000 per meal. Craving fats but if I eat very much of them I end up with fatty diarrhea. I called for guidance and they refused to give me any. My doctors know nothing. Not even the gastroenterologists.
I finally got a diagnosis from genetic testing at sequencing.com. $400 for your whole genome and comparison to a database of genetic disorders. You will find all your family illnesses listed there but of course, most of them won't strike you. But my dad's leukemia, the family colon cancer, the Hirschsprung's some have, minor vitamin deficiencies, and other diseases we haven't seen were all listed as highest probabilities. There were more than 40,000 lowest probabilities (which is why doctors without genetic guidance have a real problem with getting a diagnosis of the "Zebra" diseases).
Hereditary autoimmune pancreatitis.
My grandfather thought he had contracted the problem from eating contaminated beef during World War II. There are two others with the same symptoms in the extended family.
Autoimmune pancreaticitis attacks can be ended with prednisone.
That's important because the pancreatitis progressively damages the pancreas.
Same symptoms as pancreatic cancer, but it doesn't kill you early. The only unaided way to stop the pancreatitis is to exhaust your white blood cells . Which you do by not eating or drinking (except some water) for 72+ hours)
I can't get to Mayo because I can't drive up there. Not until I get cataract surgery. I'm 72.
I have a problem with both fats and proteins. Proteins cause the most pain. When I ran out of Zenpep last month, I used health food enzymes and went on a vegetarian diet. I was surprised that I could eat the higher-fat, low-protein diet. In my lifetime I've become progressively intolerent or allergic to seafood, dairy, wheat, hard boiled eggs, and unaccompanied eggs, And just recently I've been having troubles with all meats. Something seems to go right through the kidneys. Ot it could be an "allergy" that's showing up as kidney passthrough/bladder irritation. Very smelly.
Anyway, I opened up one of the Zenpep capsules to split the dose and saw how little was in there, and got online.