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← Return to Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
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Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
Post-COVID Recovery & COVID-19 | Last Active: Mar 15 10:56am | Replies (17)Comment receiving replies
Excellent initiative. Here in Brazil, where I live, there is a lack of awareness, and it is very frustrating to see that Long COVID is rarely mentioned in the news, if at all. After consulting with five doctors who tried to convince me that:
a. I had depression
b. It was menopause
c. Go to Pilates, and it will be fine
d....whatever...
Now, there are at least two physicians who believe that I have the symptoms and acknowledge that the condition actually exists. However, we still face stigmatization here.
I don't know how things are in the US, but probably much better than they are here.
Replies to "Excellent initiative. Here in Brazil, where I live, there is a lack of awareness, and it..."
@janeaddams is absolutely correct, it is not much better here in the U.S. I’m here in NYC and there are some LC Recovery Clinics and they do at least acknowledge that what I’m experiencing is real. My PC doctor doesn’t, his approach is to eliminate what it’s not before he MIGHT consider its LC.
I also for the first couple of years was going to multiple specialists and was told, it’s hormonal and/or anxiety. It was so frustrating and scary because I knew something was wrong! It wasn’t until a family member mentioned Covid, and to look into LC. So I did my own research through that I found this site and a couple of LC Clinics.
I went last December and the LC doctor said I did have Dysautonomia (POTS) “like” symptoms which he does believe was brought on by Covid. He said it has been a common disorder most people who had Covid are suffering from. He also said it being theorized that there could still be remnants of the virus still in some people causing symptoms, why?! They just don’t know yet.
So do I feel better symptoms wise, absolutely not, it did give some sort of comfort knowing I’m not imagining it all, a little.
It’s so many of us feeling lost, and left behind, it’s a struggle for me every single day! I grieve a life I no longer have.
I pray we all are healed, healthy and happy again!
Wishing all the best!
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Thais, a most interesting perspective. From my POV, things aren't much better here, although Long Covid is beginning to hit the news just a bit. Overall, I believe we're a country in denial about Covid and eager to move on from it; nice if you can. As you read through the posts you'll see the same kind of frustration with the "help" those of us with LC (and lucky enouh to have insurance that pays for it) have been getting from our medical providers. Most of the posters are dealing with similar frustrations, and among the most common is that many doctors seem to know little or nothing about LC or how to treat it, and many of them simply deny it's existence, attributing the symptoms to (as you suggest) female problems, all in your head, and maybe malingering... etc. The LC clinics are few; there doesn't seem to be much uniformity in their various approaches, but they do provide validation and some helpful suggestions, and hopefully they're learning from us so clinical applications can be developed. . Please continue reading... one thing you'll find that IS comforting is that a lot of people on this Forum understand, empathize, and offer some pretty good suggestions. Good to hear your point of view...