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Has anyone been diagnosed with Central Sensitization?

Chronic Pain | Last Active: Mar 6 10:01am | Replies (195)

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@barbfdh

This is very interesting to me. I have posted on different support groups because doctors do not have a clue what is wrong with me. I had a stroke in 1998 (49 years old) It affected my dominant right side. Have had pain on right side since especially right leg & foot. Also never felt good after stroke, hard to describe, but always nauseous with GERD, bowel problems, fatigue. Went to Mayo Clinic one year later, only thing that figured out was maybe had IBS. Tried various antidepressants (made me feel worse) Tried ECT treatments - nothing. Put on Methadone for pain and Alprazolam for anxiety. Hospitalized for hypercalcemia (after diagnosis of osteopenia & told to take more of the Tums that I was taking for GERD) Then diagnosed with hypothyroidism which increased fatigue, caused weight gain, bowel issue (not constipation) Then had my gallbladder removed-had a gallstone size of golf ball. More pain. At the time, a nurse asked if I had fibromyalgia because of pain. When asked doctor at pain center about this, it was dismissed for some reason. So went for number of years just living with these things, taking pain & anxiety meds, feeling lousy & in pain. In 2016, started getting bad lower back pain & sciatica pain in right hip. Found out I had stenosis, had spinal fusion L4-L5. This was a horrible experience, mostly because I was in horrible pain after surgery but everyone just thought I wanted more pain meds. I spent 15 days (10 in rehab) and was about to be sent to a nursing home for more rehab when finally after throwing a fit about the amount of pain I was in, doctor had a MRI done. I had a blood clot in base of spine causing the pain. That really set me back. Also started a long line of specialists because again no one could find anything wrong. Doctor told me maybe I needed therapy. So changed doctors again. Went off pain meds (on Oxycontin & oxycodone), started using medical marijuana. Then covid hit-got first two shots and went from hypothyroid to hyperthyroid. This naturally made me feel worse. Then I caught covid and maybe I have long haul covid. It has taken 3 years to get my thyroid normal? Then I had genetic testing done, found out I have the MTHFR gene variation T/T. Started methylated vitamins, which made me feel little better. But now have osteoporosis & last labs show extremely high PTH levels but slightly elevated calcium. So did 24 urine catch-normal calcium. All I want is to feel better. It's been 26 years and maybe it's my age (75) but I seem to feel worse every day. I am so frustrated by the medical field.

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Replies to "This is very interesting to me. I have posted on different support groups because doctors do..."

It has been 10 years post stroke for me, and so many of your ailments apply to me too. There is no joy in waking up because the stroke after effects never leave. I take nothing for pain, as I don't tolerate serious pain medications well. You wrote "never felt good after stroke" and that sums it up for me too. The right air pressure on any given day lets me feel better, and pleasant distractions are my two effective "medicines". Stress adds to the pain, so I try to avoid it.

When I think I got a raw deal, and how inept the doctor at the ER was who first treated me, I think of how lucky I am to have lived through the stroke, and all the family events I have lived to see since that epic event. Recently my husband and I (married 60 years) had our first great grandchild.

Your wrote about your experiences so well. Thank you for sharing. Knowing the pain of others is somehow comforting as we endure our own.