I just joined this discussion group and wanted to share some information. My wife has had long covid for about 1 1/2 years now. At first we had no idea what was going on. Her PCP wanted to try some "simpler" things first (taking her off of prescriptions) and we agreed. Unfortunately, that didn't help anything. After minimal response from the PCP my wife changed to a different one. In over a year now, this Nurse/Practiioner hasn't offered much help. In fact, at one time stating that she didn't know much about long covid. Not a crime, most of us didn't know much but she didn't make much effort to learn. Now, my wife has gotten to the point she can't drive and is largely housebound. Going to the store etc. is out of the question. In desparation, I have been searching the web and came upon this site. Noticing the comments about prednisone, I looked and found some small studies that supported the positive comments here. We took this to the PCP and she did give my wife 7 days of 10mg prednisone. The first three days didn't change much but on the 4th day it was like a light switch was thrown. Her weakness was reduced drastically, she was able to go to the store, and even suggested taking a short walk with our dog. Just a night and day difference. She asked the PCP for some sort of protocol (on for a month, off a month etc) and got a phone call today saying "No". If you crash again, come back in and I might give you another 7 days. Our feeling is that this isn't much help when we have something we know that works and in low dose there are numerous articles that it is safe. Has anyone ran into this? How did you resolve it? Is there any documentation showing that long term low dose is safe? Thanks for reading, guess I got a little verbose.