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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@hopeful33250

Hello @hallinvestmentgroup and welcome to the NETs support group on Mayo Connect. I appreciate you sharing your experience with NETs. You said that you went to Mayo Clinic for a second opinion. I'm wondering how they advised you.

You mentioned that you had your first radiation treatment a week ago. Do you know how many treatments you will have and how frequently they will be?

I'm glad to hear that the Xermelo is controlling the diarrhea. Are there any other symptoms that are bothersome right now?

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Replies to "Hello @hallinvestmentgroup and welcome to the NETs support group on Mayo Connect. I appreciate you sharing..."

Wondering if anyone has heard about monoclonal antibody treatments and if they have been tried on NET’s?