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@loribmt

There are so many wonderful success stories so please don’t let fear hold you back. But the lack of a support system is problematic. I’ve been combing my informational sites trying to find a solution for you and another member.

One of the better sites for assisting a caregiver is the National Bone Marrow Transplant link… but haven’t found anything for patients without a caregiver.
https://www.nbmtlink.org/helpful-resources/
The first month is the roughest but you’d still need someone pretty much full time the 2nd month as well.
This article sums up why it is necessary for a caregiver and their roll. https://bmtinfonet.org/transplant-article/role-family-caregiver#:~:text=Most%20transplant%20centers%20will%20not%20allow%20a%20patient,friends%20for%20help%2C%20or%20hire%20a%20temporary%20caregiver.

Hopefully the social worker will have some good suggestions. Will you let me know what you find out? It could be so valuable to other members in the same tight spot.

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Replies to "There are so many wonderful success stories so please don’t let fear hold you back. But..."

Yes, I'll definitely share any information I can get from the social workers. My Dr just told me he wants to put the transplant on the back burner fur now, I'm doing pretty good and a new pill is being approved by June that he's very hopeful about. I'm happy to wait and see how I do without going through a BMT. Thank you for talking with me, it helps a lot. Kerry