I have CIDP, with burning pain in my feet and ankles. My feet are always cold and often red or purple, and my fingertips are often purple.

A few things that help me: soaking my feet in cool tap water for 10 or 15 minutes, Lidocaine cream 5% numbs my feet for a couple of hours, stroking my legs VERY lightly in various places produces a pleasant effect in my feet, a blanket lifter so the bedding doesn't touch my feet, resting my feet on a soft pillow. And then there are the mind games. I focus on a part of my body that doesn't hurt, or I focus on the pain and break it down by sensation. I notice the burning, the electrical tingling, the pulsing of my heart rate. Usually as I do that, the most painful sensation becomes less noticable.

Sitting and lying down are the quickest pain triggers. Of course, that's all I can do these days. Generally walking is less painful, up to around 15 minutes.

It's crazy late and I should try again to go to sleep. Keep us posted as you get more information about the cause of your symptoms.

Jim

I do when I stand too long believe it or not it’s part of neuropathy. It’s read this website
www. texasfootdoctor.org

Hopefully, that will help explain it.
Dr. Anne Oaklander’s YouTube video also covers it if you google her.