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Will soon have a Bone Marrow Transplant: What can I expect?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Mar 6 12:54pm | Replies (21)Comment receiving replies
Thank you, it's nice to hear a success story, I've heard so many difficult ones. My fear is holding me back and my lack of a support system. I just don't have anyone past the first week. I can't be a candidate without one in place. I'll speak with the social worker to see if there are people available that I can afford, but I don't have a lot of hope for that.
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There are so many wonderful success stories so please don’t let fear hold you back. But the lack of a support system is problematic. I’ve been combing my informational sites trying to find a solution for you and another member.
One of the better sites for assisting a caregiver is the National Bone Marrow Transplant link… but haven’t found anything for patients without a caregiver.
https://www.nbmtlink.org/helpful-resources/
The first month is the roughest but you’d still need someone pretty much full time the 2nd month as well.
This article sums up why it is necessary for a caregiver and their roll. https://bmtinfonet.org/transplant-article/role-family-caregiver#:~:text=Most%20transplant%20centers%20will%20not%20allow%20a%20patient,friends%20for%20help%2C%20or%20hire%20a%20temporary%20caregiver.
Hopefully the social worker will have some good suggestions. Will you let me know what you find out? It could be so valuable to other members in the same tight spot.