← Return to Living With Large-Fiber Neuropathy

Discussion

Living With Large-Fiber Neuropathy

Neuropathy | Last Active: Mar 6 4:20pm | Replies (35)

Comment receiving replies
@njed

Hi Ray - I noticed in your post that you are "wobblier at certain times of the day" and that I also find interesting. I'm sure you mentioned this to your doctors. Any comments from them? I have similar symptoms to you, but my lack of quality balance is constant. It might be slightly worse in evening, but I contribute that towards being tired at end of the day. Also, does your numbness increase in one leg or both legs at same time you feel wobblier? Ed

Jump to this post


Replies to "Hi Ray - I noticed in your post that you are "wobblier at certain times of..."

Ditto, ditto, ditto, Ed! I have mentioned "certain times of day" to my doctors but never elicited much of a response besides, "Mmm, that's interesting." My overall balance, similar to what you say about yours, is never first-rate; I'm always having to be careful. But also similar to yours, mine is often worse (more challenging) in the evening, which I, too, attribute to a full day's leg fatigue. A night's sleep, fortunately, gets rid of that fatigue. Numbness in one leg or both? I'd have to say both––although I'm a bit hesitant to call it "numbness;" what I feel is much the same sort of leg weariness I used to feel after running 10-15 miles: muscle achiness, especially in my quads, and knee unreliability, like if I do pay my knees strict attention they might just go out on me, or "flamingo" (bend the wrong way). Of course, this may be numbness, just a different manifestation than I imagined. –Ray