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Is enucleation appropriate for me?

Neuroendocrine Tumors (NETs) | Last Active: Apr 3 2:44pm | Replies (28)

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@bellom

The same thing was said to me. I have a 5-7mm tumor on the head uncinate of my pancreas. They are scanning it every six months to monitor. When I asked the doctor about enucleation, she said it doesn't have a high success rate. I think she is just not able to do the procedure. So I went to get a second opinion from NIH. They said the same thing. The location makes it tricky for the enucleation procedure, although not impossible.

Right now, we are determining whether it's a functional or non-functional--meaning, is it affecting my hormones.

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Replies to "The same thing was said to me. I have a 5-7mm tumor on the head uncinate..."

Sorry you are going through this also.
I read also that there is a lower success rate with Enucliation .
I read too that sometimes the surgeon will start with enucleation but have to convert to the Whipple procedure because of problems.
My feeling on this is that I would the Enucliation as a first choice. With the thought being if the PNET persisted the Whipple procedure could still be done later. I don’t know if I am correct on that assumption though.
Maybe there are even other options that I will learn about with my next visit on the 12th.
The Whipple is just such an invasive procedure I hope to exhaust all other options within reason.
Best of luck to you as you move forward.

Hello @bellom,

I see that you are monitoring a PNET on a regular basis. How are you feeling? Are you involved in any treatments at this time for symptom management?