← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 4 hours ago | Replies (7051)

Comment receiving replies
@jenatsky

@jumpin138 now that you’re a chronic pain status you require long term pain meds that work 24/7. Take a gander at this and share with your pain doc. You appear to be on track with your activity so don’t try and over do so you don’t exacerbate your pain. Since you have degenerative arthritis it’s only time before something else comes up. Good luck with pain control.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675640/

Jump to this post


Replies to "@jumpin138 now that you’re a chronic pain status you require long term pain meds that work..."

I gave Buprenorphine a try for over a year, hoping I could switch to that from the MS Contin I'd been taking for years. When that didn't work, I tried Topamax for several months until I got to the place where I was feeling cognitively impaired. Now I'm taking Dilaudid.

I certainly didn't start with an opioid for my CIDP pain. I tried at least two dozen medications over the course of 8 years, and they either did nothing, or had unacceptable side effects, or sent me to the hospital. I had a spinal cord stimulator implant in 2017 that gave me 80% relief! I'd forgotten how good that felt! After the first year it gradually decreased in efficacy, but it's still turned on with the thinking that it probably helps enough to keep it. People find them quite effective for back pain (most of my pain is in my feet and ankles), as well as several other areas.

I've heard from people who have been helped with Buprenorphine, so it's certainly worth a try.

Jim