Hello @charliepnet,

I really admire the steps you are taking to ensure that you are getting the best possible treatment for your PNET. Your research, follow-up and seeking second opinions are good ways to approach your concerns.

As you are seeking another opinion at Mayo Clinic, I wanted to provide you with a link to appointment information for all three of Mayo's locations. Mayo Clinic has NET specialists at all three campuses. Here is the link, http://mayocl.in/1mtmR63.

I would also like to invite you to a NETs support group meeting, which will be on Thursday, March 7, via Zoom, from 5:30 to 7 p.m. EST. You must register in advance in order to obtain the Zoom link. Please click the link below to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.
Location: Zoom online meeting
Contact: Loriell Grossling, LCSW; grossling.loriell@mayo.edu

This month the meeting will be Round Table, which means that everyone who is in attendance will have the opportunity to share their experiences and to ask questions of each other.

I look forward to hearing from you again as you look for answers. Will you continue to share on Connect as you think about the options available to you for follow-up?