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Is enucleation appropriate for me?
Neuroendocrine Tumors (NETs) | Last Active: Apr 3 2:44pm | Replies (28)Comment receiving replies
My tumor is on the head of my pancreas. It is well defined, l.7 cm. Non functioning, Ki67< 3%. I do not know how far from the pancreatic duct.
The surgeon I saw talked only of doing the Whipple procedure. However she concluded we should wait and watch it for now. Said I should see her again in a Year.
I returned to the PNET specialist who agreed but said he would see me in 3 months not a year. I see him March 18 at that time there will be another scan done to determine if the tumor has changed in any way.
Since the visit with the surgeon I learned of Enucliation . I wrote the surgeon and asked why Enucliation was not mentioned to me and would I be a candidate for it. She wrote back, saying no that the tumor was too close to the duct.
After my next visit and a new scan is done I would like to send all my info to MAYO hoping to get another opinion from a PNET surgeon there as to wether enucleation is an option!
A couple weeks after the incidental find of the PNET I learned I had Prostate cancer. The prostate was surgically removed January 18. All went well and I am recovering from that.
I just want to be sure enucleation is out of the question . The Whipple procedure scares me.
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Hello @charliepnet,
I really admire the steps you are taking to ensure that you are getting the best possible treatment for your PNET. Your research, follow-up and seeking second opinions are good ways to approach your concerns.
As you are seeking another opinion at Mayo Clinic, I wanted to provide you with a link to appointment information for all three of Mayo's locations. Mayo Clinic has NET specialists at all three campuses. Here is the link, http://mayocl.in/1mtmR63.
I would also like to invite you to a NETs support group meeting, which will be on Thursday, March 7, via Zoom, from 5:30 to 7 p.m. EST. You must register in advance in order to obtain the Zoom link. Please click the link below to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.
Location: Zoom online meeting
Contact: Loriell Grossling, LCSW; grossling.loriell@mayo.edu
This month the meeting will be Round Table, which means that everyone who is in attendance will have the opportunity to share their experiences and to ask questions of each other.
I look forward to hearing from you again as you look for answers. Will you continue to share on Connect as you think about the options available to you for follow-up?