← Return to Frustrated and continuing to look for diagnosis

Discussion

Frustrated and continuing to look for diagnosis

Autoimmune Diseases | Last Active: Mar 4 8:39am | Replies (13)

Comment receiving replies
@becsbuddy

@lolajean @laurie6 @blairbodrato You all seem to be caught in a web of doctors and blood tests, and unknown diagnoses! I got lost just reading it all. But the truth is, you are suffering while you are caught in this web. I’m just so sorry.
I don’t know where you live, but the Mayo Clinic has a care network of hospitals around the country that you may want to try going to.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
These are independent hospitals that work closely with Mayo. Maybe someone at one of these hospitals could help you pull it all together! I also have this lists of tips for a diagnosis from the Autoimmune Association .
https://autoimmune.org/resource-center/diagnosis-tips/
I hope this has been of some help. Maybe you could continue your conversation as you compare what you learn. And, please let me know, too!

Jump to this post


Replies to "@lolajean @laurie6 @blairbodrato You all seem to be caught in a web of doctors and blood..."

@lolajean @laurie6 Thank You so much. I happen to live in the NYC area and have access to amazing docs. I just started having these symptoms daily after getting my recent Covid shot back in December and they gradually got worse to the point of being not knowing which days I’m able to function. I will say this…there are medications that work I just haven’t been prescribed them for this. I had extra from my Crohn’s disease and by process of elimination I realized that my eyes specifically weren’t giving me issues when on prednisone. This tells me that it might be something inflammatory along with whatever else but the bloodwork I did get in the past shows infections in all white cells which have gotten worse bringing me to today leading me to call an ophthalmologist with urgency. I have gone before to a retina specialist eye dr and ent stating all was good. Well it’s not. I’ll be in tears you can guarantee this begging for at least something to hold me over until I find someone else who can find a glimpse of anything. An MRI was also clear.