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DiscussionFrustrated and continuing to look for diagnosis
Autoimmune Diseases | Last Active: Mar 4 8:39am | Replies (13)Comment receiving replies
Replies to "@lolajean @laurie6 @blairbodrato You all seem to be caught in a web of doctors and blood..."
@lolajean @laurie6 Thank You so much. I happen to live in the NYC area and have access to amazing docs. I just started having these symptoms daily after getting my recent Covid shot back in December and they gradually got worse to the point of being not knowing which days I’m able to function. I will say this…there are medications that work I just haven’t been prescribed them for this. I had extra from my Crohn’s disease and by process of elimination I realized that my eyes specifically weren’t giving me issues when on prednisone. This tells me that it might be something inflammatory along with whatever else but the bloodwork I did get in the past shows infections in all white cells which have gotten worse bringing me to today leading me to call an ophthalmologist with urgency. I have gone before to a retina specialist eye dr and ent stating all was good. Well it’s not. I’ll be in tears you can guarantee this begging for at least something to hold me over until I find someone else who can find a glimpse of anything. An MRI was also clear.