I’m not familiar with your condition or autoimmunity, but I have FGFR3 positive small fiber neuropathy (it’s an antibody that should be in low numbers in the body, but for people who have it extremely high, it’s associated with SFN). There’s very limited research that has suggested IVIG has helped people like me, but it’s still considered experimental and has been for years.

I was seen at Mayo Jacksonville and the internal medicine physician coordinating my care said it sounded like “a stretch” to use IVIG to tread small fiber neuropathy. He referred me to Neurology anyway, but the neurologist I was referred to said that was outside of his area of expertise and they didn’t even recommend anyone else.

I was also seen by Neurology in Rochester years ago; they confirmed my SFN diagnosis, but just recommended the usual (gabapentin/Lyrica, capsaicin, acupuncture, chronic pain program, etc.)

I’m just one case study, but my sense in both situations was they were highly skeptical of IVIG for SFN. I have heard of others who did it at Johns Hopkins for what that’s worth.