Thank you for your kind words. I couldn’t agree more! We must find a way to get the word out to women regarding their breast density so proper imaging can be used. I was a C density so those mini tumors hid in the density making it very hard to find. I know of 2 women whose ILC was seen on a routine mammogram but most radiologists don’t recommend a MRI because it’s hard to get the insurance paid for that. My radiologist couldn’t see anything on the mammogram or the ultrasound but because my left breast had gotten larger and firmer, he called for it. For most women, though, they just get blindsided, like me, and it’s already stage 3 or 4 and has metastasized.

Several states, mine included, have laws on the books that the radiologists must tell us in the mammogram report we receive what category of density the woman has. They have a disclaimer of sorts stating something like “you have dense breasts which is completely normal but you can reach out to your doctor to discuss the possibility of further imaging if you so choose”. That puts the onus on the patient (likely a layperson) to call the doc to discuss it. I have always had doctors who read my mammograms and it used to be that the doc would call me if that was needed. No longer. They are just too busy. That’s one of the reasons why this cancer was overlooked. I should have been in the high risk breast cancer clinic but my doc didn’t read my mammograms. She didn’t know that ILC exists. Most doctors don’t know anything about it. I pray the system gets fixed and no woman has to go through what I did. 🙏🏻🙏🏻🙏🏻